“That’s Okay, I have a Superpower!”

Three of Scarlet’s cousins came to visit this past weekend (July, 2019). We experienced all of the classic summer stuff: swimming in the pool, playgrounds, and s’mores. It was a blast; Especially the swimming. 

IMG_4867Scarlet’s mommy insisted that Scarlet be lathered in a strong sunblock before getting into the pool. That is normal, and all of the kids had to forego the inevitable wait period of letting the lotion dry a little before getting into the pool; Collective “Ugh!”

Additionally, Scarlet needed to have her cochlear implant (CI) equipment changed to waterproof wires and coils. We recently received new pool appropriate boxes to put the CI processor inside to keep it safe from water damage. It takes a while to get all of this situated. 

While everyone was patient enough, no one wants to wait even one extra second when a beautiful refreshing pool is calling your name on a hot summer day! They all waited for Scarlet to finish getting ready before diving in, though, which I thought was very classy.

It was also friendly and kind for Scarlet’s cousins to help her realize that one of her coils was not on her head, but dangling in the pool. This happened constantly throughout the day. Everyone was very patient, another classy trait.

At the end of the day, Scarlet’s mommy Sonia read “Scarlet’s Superpower” to the cousins. Afterward, we discussed the superpower of not being able to hear. Sonia relayed a cute and funny story to me.

This past week Scarlet had a dentist appointment. When the technician was preparing to clean Scarlet’s teeth, he apologized for the loud noise that the air pump was about to make. “A child recently tampered with it, and it broke,” he explained.

Without skipping a beat, Scarlet reached up to her head, and while removing her coils, exclaimed, “That’s alright, I have a Superpower.” I loved the story and was proud of my daughter for taking charge of the situation. Not only was she perfectly comfortable with the fact that she wears CI equipment in order to hear, but Scarlet was proud to display its functionality. How many kids -and adults- are embarrassed of equipment that helps them with a disability? 

This is the message of “Scarlet’s Superpower”: Try to take negative situations and turn them into positive opportunities.

When the kids were waiting for their sunscreen to dry before getting into the pool, Sonia told everyone that Scarlet still has to “waterproof” her CI equipment. The horrible task of waiting turned into an opportunity to learn about water-damage and how to keep water out of things. It also masked the task of buying time. They would have had to stand around waiting, anyway! 

The next time you are tempted to complain about something, see if there is anything positive that could be gleaned from the situation. We can all possess the superpower of seeing the positive. It takes practice, discipline, and sometimes creativity. Good luck!

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Book Information:

Scarlet’s Superpower is available from the Apple Bookstore in digital form for free: https://books.apple.com/us/book/scarlets-superpower/id1461703800

And, it can be purchased for the Kindle App from Amazon for $2.99: https://www.amazon.com/Scarlets-Superpower-Matthew-Weimann-ebook/dp/B07RLFC26K/ref=sr_1_2?keywords=scarlet%27s+superpower&qid=1563187286&s=gateway&sr=8-2

Scarlet’s Hearing Equipment

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Scarlet draws the “thumbs up” from page 11 of her book. (Notice her shirt says, “Be Yourself”.)

It is natural for kids to be narcissistic, thinking mostly about themselves and their personal situations, until they are tweens (10-12). Scarlet, being only 7 at the time of this writing, doesn’t totally understand how different her hearing situation is from most other people.

One difference that Scarlet is well aware of is her hearing equipment. In her book we mention the great advantage to being able to NOT hear when it comes time to go to bed. This is true… not the monster creeping out of the closet, but everything else. When Scarlet wakes up in the morning, she can’t hear anything until she puts her coils onto her head. This means that Scarlet, a 7 year old, is wandering around the house, completely oblivious to any sounds happening around her.

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[As I type this, at 5AM in May with the windows open, I hear birds singing and traffic zooming on a busy road near our house. Scarlet will never know the experience of waking up to birds chirping.]

Thankfully, it is not difficult to equip Scarlet with the tools for hearing. There are several companies that offer cochlear implant equipment. The one our family went with, Advanced Bionics, has a couple of different devices (at the time of this writing; technology is changing all of the time). One of them allows the processor to be clipped to her clothing. This one has a long cord that reaches from the processor to the coil that sticks to Scarlet’s head. A couple nice things about this equipment is that it is easy and fast to put on. It can clip to anything; Sometimes I clip it to Scarlet’s hair! Another great thing about this device is that it is waterproof. Some drawbacks to this one, though, are that its batteries are hard to get to and need to be changed often. Plus, the long cord gets caught on things and pops the coil off a lot.

The other device that Scarlet has for hearing attaches to the back of her ear with double-sided tape. An earlier version of “Scarlet’s Superpower” had the word tear in it on page 4, when it says, “I reach up and slowly, carefully remove one of my sound processors.” We removed this word because we didn’t want the book to be disturbing. That could diminish the message of the text. The truth of the matter is that every night we DO have

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It is common for Scarlet’s hair to get stuck to the double-sided tape.

to rip the processors off of Scarlet’s ears. And, many times it really hurts her, pulling a hair that is stuck in there. Also, I fear for my daughter’s skin behind her ear. Some advantages of these devices are that they are smaller with shorter cords, lighter in weight, the batteries last longer, and they have the ability to attach an additional device that allows her teacher to use an FM speaker system to broadcast directly to her cochleas. (This last feature may be the subject of a future book; one about her bionic abilities.)

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Here is Scarlet’s teacher Mrs. Brans celebrating with Scarlet the day she signed the National Anthem at a baseball game. This was the same day that “Scarlet’s Superpower” was published. We had to leave the game early, because it began to rain.

A serious drawback of this latter device is that it is NOT waterproof. This is where the subject of this blog comes into play. Scarlet has recently begun complaining a little about not being able to go outside for recess if it is drizzling or if rain seems imminent. Having her equipment break is too risky. One thing I didn’t mention about the equipment, and I won’t expand upon, is that it is a hassle and nuisance to have to get any of it replaced. Thank goodness we can and it is possible, but it is FAR from convenient.

So…

Scarlet’s Superpower, albeit totally awesome, and it truly is, came from a desire to help Scarlet feel good about being different. “I might have to stay inside when it is wet out, but I don’t have to hear the fire alarm.” My aim is to empower Scarlet AND kids like her with this new, SUPER attitude or way of looking at their disabilities or special conditions, a positive outlook.

We are already seeing it play out when we hear from children telling us that they are okay with wearing glasses because they now view it as a superpower. Please, share more of these stories with us. And, share “Scarlet’s Superpower” with others, because this is one of those synergistic powers, in that, rather than being depleted, the more it is shared, the greater it becomes. That will be the topic for another blog.

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Planning for page 8 of “Scarlet’s Superpower”